Sunday, 7 February 2010

Babyloss mums: What resources helped you most????

I've been offline the last little bit because I've got a lot of work writing and editing for people at the moment. Juggle, juggle.

My reward, when I get through my deadlines, will be catching up on the blogs. But till then I think of so many of you so many times throughout my day. If thoughts were worth currency, we'd all be rich.

I'm going to the first meeting of a support group this week that is newly founded by a woman here in the city (we moved to this city at the end of June 2009). All summer I hoped to find some sort of local resource and didn't. A few weeks ago the staff at Family Services playgroup handed me a pamphlet announcing this bereaved mother's new group and I called immediately to RSVP. She lost her baby boy in May 2009 as well.

The day after I connected with Kim about her mother-to-mother support group I met a mother who was carrying a baby boy with Trisomy 18; our daughters were playing in the playground and we ended up talking (Me thinking, don't talk about the dead baby! Don't mention George to this very pregnant mother!) and it turns out she shared with me that her baby had a fatal diagnosis. And of course I talked with her about George. We cried together and talked a lot.

Providence for both of us we decided.

The first meeting is tomorrow night (Monday night). We will be a small group of newly bereaved mothers. There is another mother who is carrying a Trisomy 18 baby as well. So it would be really nice to hear from any of you mothers who have walked that path already.

Any advice, links, and resources you'd like to share with me via my blog would be so appreciated because I'll share with the women who are at the group tomorrow night and then they can meet some other bereaved mothers online and learn from your experiences about what's out there that might be meaningful to them.

I learned of one last week from a friend I made here who sadly just miscarried her second baby at about 13 weeks into her pregnancy. She found out about The Church of the Holy Innocents in downtown New York City. This Catholic church was founded in 1868 and is located near Times/Herald Square and the busy business district. It is known as the "Actors' Church." I remember seeing it when a girlfriend and I were in the Big Apple and it's amazing to me how special it is to me now.

Bereaved parents are invited to have their baby's (or babies) names inscribed in their Book of Life, which is kept in a special area in memory of the holy innocents. A candle is always lit in memory of babies who have died before or at birth and people pray there all day long. On the first Monday of every month the church's 12:15p.m. service is celebrated in honour of deceased babies and for the comfort of their families.

To read more about this church and its beautiful ministry to remember deceased babies and comfort their families, link here. You can opt to receive a Certificate of Life with your child's name on it by email. I heard from the priest within 12 hours and he sent me a very kind and compassionate email.

I'm so relieved to find out about this local support group, but sad at the same time. It seems wrong to be so happy to go meet other grieving mothers tomorrow night. But I am in a conflicted sort of way. I really am.

18 comments:

Jeanette said...

Karen, I was thinking of you only yesterday and wondering how you are.
Your new group sounds good. I've never been brave enough to go to my local sands group. I'm sure it'll be great for everyone going.
My only resources have all been online, mostly meeting all you lovely blogging mamas.x

Sophie said...

Yeah, I'm the same as Jeanette. I've not really utilised any resources other than what I've found on the net. Maybe one day that will change but for now I am okay with that.

I'm glad meeting these other women in person makes you feel good.

xx

Bree said...

I'm so happy that you will be attending the new support group. I've made some wonderful friends through mine (Nimoli being one of them).
I'm impressed with that church. I was raised Catholic and have been kind of turned at the fact that the faith doesn't really recognize stillborn babies. I'll have to look that church up.
I don't really have any great resources for you, but do you ever read carleighmckenna.blogspot.com? Her daughter was diagnosed with ancephaly and she chose to carry to term- I think she ended up carrying her pretty far until Carleigh passed away in the womb. She did some amazing things like maternity photos, did a cast of her belly, planned a beautiful funeral. I think she's also got some good resources listed on her blog.
Love to you, Karen!

Jill said...

I hope that the first meeting goes well. My husband and I both attend an infant loss support meeting once a month. I am happy to have this group and the other parents who offer their support. I totally understand what you mean about it feeling wrong to be happy to meet other parents. I am looking forward to our meeting this week and it feels wrong to be looking forward to it and happy to be able to talk with other parents.

Emerging Butterfly said...

What has helped me most......

I'd have to say that my Old English Sheepies are my most helpful resource. Especially Ferdinand who is gentle, loyal and my everlasting shadow. Next to that would be loving massages from my husband, and homeopathic treatments....I couldn't sleep without homeopathic coffee 30X.

I am also very very grateful for all the women all over the country that have become the dearest friends in my world. ((HUG))

Gottjoy! said...

Karen,
I have been thinking of you and wondering how you have been,
I think that is great about the support group. Connecting helps so much in this journey.
I attend a local GriefShare once a week. No one has lost babies, but it seems we all speak the same language in so many ways. It has helped. I am also participating in the online group...a little nervous about that.
Keep us posted on how the meeting went.
Thinking of you....

Catherine W said...

I've also never been brave enough to seek out a group (other than my fellow bloggers who are an amazingly support to me!)
I am glad and sad all at once that you have found these other mamas and especially so that they have found you Karen. Whilst I can only wish you had met under other circumstances, I'm sure that this new support group will be such a comfort to other parents. x

Juliet said...

I was thinking about you and wondering how you're going. I'm glad you've had lots of work, and hope that it's enjoyable for you.

I went to SAND fortnightly for 6 months after Lachlan died, and it helped me a lot to be with other people who "get it", and to realize that I'm not alone.

I found the pregnancy and birth loss forum at mothering.com to have a bunch of wonderfully supportive women for me. They definitely helped me get through those tough months.

And definitely blogging helped a lot! I was hesitant to start a blog, but Sophie encouraged me to, and it was a wonderful way to feel supported. I think I found my first babyloss blogs by going to http://babylossdirectory.blogspot.com/

I hope your first meeting went well!

Karen said...

Thanks everyone. (((Hugs))) You guys know you've gotten me through this far. I'm about to leave for the group and snuck to the computer to check and see what responses I've had. I'm going to let them all know about Carly's Names in the Sand and For Your Tears and Still Life 365 and so on. Bree - click on Morning Light Ministry on the left side of my blog and you may find comfort there. I had no end of support from our parish and other parishes (our priest was away when George died). A priest came to us in hospital before I delivered and he was so kind. He stressed that an unborn baby is a holy innocent, that there is no need of baptism because they're going right to heaven (baptism by desire is how he said it to me). I know some women have encountered ugly ideas like limbo (don't even get me started - that's like a grassroots idea that spread like wildfire in some places). Anyway, if you didn't have support from our faith - which says life begins at conception - I'm so sorry. We had the option for choosing from either the service for a baptized baby or an unbaptized (the rites are hundreds of years old - this isn't some new or crazy option) and we chose baptized - baptism of desire. (((Hugs)))

Once A Mother said...

it is no wonder you have so much writing work, you are a wonderful writer! i will be thinking of you tomorrow and hoping you find lots of healing connections at your meeting, and that the same comes to the women dealing with fatal diagnoses for their babies. thank you also for the beautiful link to the church.

Akul's mama said...

My support group is so amazing...I am glad you found these women Karen. I know it will help you a lot. Hugsssssss

Akul's mama said...

My support group is so amazing...I am glad you found these women Karen. I know it will help you a lot. Hugsssssss

Holly said...

I really wish I had a local support group to go to and be able to connect with other moms IRL.

One of the things that helped me the most when carrying to term was my yahoo anencephaly support group. I was able to connect with moms who had gone through and were currently going through the same thing. We were able to share and offer advice to each other. I would share with them about Sufficient Grace Ministries because they can receive materials such as a comfort bear of a memory book for their babies. Also My Very Own Angel is good too.

Beth said...

No one really seemed to mention books... I know one of everyone's favorites for stillbirth is "Exact Replica of a Figment of my Imagination" and personally I loved one called "I'll Hold you in Heaven"

mia said...

I've been thinking of you so much, Karen, and wondering how you are~I have to say that my monthly support group was what got me through the first 18 months or so after Levi died. There were no blogs in those days! I'm a bit behind in my reading, and I hope you found the group helpful...hugs to you..

Misti Ko said...

I've been reading a few more of your posts, and want to say thank you, thank you, and thank you again. Everything you have to say is so helpful to me in understanding how to support my SIL.

Please don't judge your friends too harshly. They just don't know. They don't know what to do, to say, or to feel. They are afraid of their own emotions, of upsetting you, of doing or saying the wrong thing, so they do nothing. I'm seeing that right now with my husband's family. No one knows what to say. They are all trying to be "strong". No one is saying anything to anyone. It might look like they don't care, but they do.

Our friends are in our lives for different reasons. Not all of them can be all of the things that we need all of the time.

Momma bear said...

Karen I have patches and you are next on the list can you email me your snail mail at kidsoffour2005@yahoo.ca

ter@waaoms said...

Karen, please email me (or the commenter above "Momma Bear" ) your snail Mail for Patches. If we don't hear from you by the end of the week we'll have to move onto the next person. I can't seem to find your email, though I'm sure we have emailed each other before... anyway hope to hear from you.